About PXE Europe. For You.
While there is no cure for PXE, early diagnosis and treatment is important in managing the condition and preventing serious complications. Patients with PXE may need to see a variety of specialists, including dermatologists, ophthalmologists, and cardiologists.
The impact of PXE on patients can be significant. That’s where we want to help. PXE Europe is an umbrella organisation of patient organisations across Europe. Our country-members include PXE-specific patient groups active at the national level and can help patients take steps to manage their condition and find their way around the healthcare system.
Participating Countries. In Europe.
We understand that you stand stronger together. Especially when dealing with a rare disease, it’s important to combine our strengths and share our knowledge. Below you’ll find the countries that are current represented in PXE Europe:
Finland
France
Germany
Italy
The Netherlands
Portugal
Spain
Sweden
Get in touch with someone local.
We are always ready to help. Whether you need support to get in touch with a healthcare professional or you want to talk to a peer, let us know. Leave us your details and we will be in touch soon.